Reese and I saw her pediatrician today. Although the appointment had nothing to do with her feeding issues, of course her doctor asked. And I’m glad she did because we brainstormed a little. AND I am excited to report that we have a new consultation scheduled! We have tried it all. Therapies, assessments, scans, (you name it) to figure out why Reese is still not chewing. It has presented as an issue for both her nutrition and her safety. Heck, one of the main reasons I went back to school was to make sure I was doing everything I could to keep her off a feeding tube! Although I’ve been successful with her nutritionally the choking risk remains. And it’s scary. So needless to say, I am THANKFUL for this new opportunity and GRATEFUL to still have more options to explore.
Well, I hope you all have a day where fresh eyes give you new hope!!!
Waking up feeling rested. Going for a nice walk. Holding deep yoga stretches. Decluttering … my home AND my mind. Eating strawberry salad. And playing Barbies with the cutest eight year old ever.
Well, I hope you all had a day where you got to do a few of your favorite things!!!
Today is World Down Syndrome Day! And we all know that I have someone very special in my life who has Down Syndrome. My beautiful 8 year old daughter Reese!
March 21st is a global day of awareness that has been officially observed by the United Nations since 2012. How cool is that?!?! This date was chosen to represent the triplication of the 21st chromosome (3/21) found in individuals with Down Syndrome. Today I celebrate Reese and the amazing community of people with whom we share our lives.
I was told when I was 15 weeks pregnant that Reese had Down Syndrome. I did not grieve or cry. I did the complete opposite. My heart was immediately filled with hope for the future. And not just for my future or hers. From the moment that I was told that she had Down Syndrome I knew that Reese was going to change the world for the better. It was like a blanket of understanding that I had never felt before. And I have witnessed her work her magic time and time again ever since. She has softened the hardest of hearts and changed the most ridged of minds. I am so proud of her! This little girl of mine is smart, silly, kind and caring. Her compassion for others runs deep. She is a bright light in this dark world. She has taught me SO SO SO much and has showed me what real strength and perseverance looks like. And best of all, she loves me HUGE! Reese is an incredible human being and I am humbled that God chose me to be her mommy. It is truly a blessing and an honor.
I love you my Reesey Roo. You are my hero!
Well, I hope you all have a day where you celebrate EXTRA!!!
Yesterday Libs told me that Sid needed me to be home this morning to receive a package that would be delivered after 8 am. I originally thought that Sidney had accidentally shipped something important to me, instead of to herself. As I asked more questions about what to do with the package once it was delivered, I was told that the package was for me. Being Pi Day today I immediately thought that Sid somehow figured out how to send me a pie. HA! That is absolutely something she would do! But what she did, was even better.
When I returned home from Reese’s school this morning, I opened the door to my “package”. IT WAS SID! My sweet daughter booked an early flight and came HOME! I literally screamed when I saw her. Then I cried like a baby. I was missing her so much! Now with George coming home for Spring Break on Friday we will all be together again. YAY!
Well, I hope you all have a day where you get the best surprise EVER!!!
I had to think about this one before I wrote about it. I had a dream about my mom Wednesday night. It’s been decades since I’ve had a dream about her. After she died I had a few but they were always unpleasant. Truthfully, they were so disturbing that I was thankful when I stopped having them. Deep down it did bothered me that I didn’t have any nice dreams about her. But after decades of not having any I just accepted it. Wednesday night’s dream was quite surprising. It was so foreign to me but I found it comforting. I cried in my dream, but not out of grief or fear. It was of utter relief. This dream was not like the others. Thank god. It was pleasant and short. And despite us not exchanging any words it was incredibly meaningful to me. It was really good to see her again.
Well, I hope you all have a day where you have a nice little visit!!!
Today Reese started Special Olympics. She will be participating in the Track and Field Games this Spring. I am absolutely, completely and utterly excited! I’ve waited 8 years for this day … needless to say, I’m one happy mommy.
Well, I hope you all have a very special long anticipated wonderful day!!!
Perhaps scheduling Reese’s appointments to see her specialists the two days before the 24th anniversary of my mother’s passing was a bad idea. Don’t get me wrong, they went great! Reese picked out some adorable purple glasses with hearts on the side that should correct her vision. YAY! And her cardiologist couldn’t have given me better news. PRAISE GOD! I am a great case manager and I had worked long enough in the medical field to know my way around most specialties. So I usually can put up a pretty good strong front through most of these appointments. I am Super Social Worker Mom, with nerves of steel, wisdom beyond my years and complete level-headedness. But not these past few days. Good grief!
Well, I hope you all have a day where you aren’t a blubbering mess!!!