Tonight Libs and I are having a Mother and Daughter date night! We are heading to dinner and the theatre. Theatre has changed significantly since I was a child. Change is good but I love to pass on the tradition of how it used to be to my children. There is definitely a special feel to it.
Well, I hope you all have a day where you DO Hollywood OLD SCHOOL!!!
Today is my daughter Sidney’s birthday. She is the one who made me a mom and who helped me find the greatest joy I’ve ever known.
Well, I hope you all have a day where you are the one who started it all!!!
This afternoon Reese and I were playing with her stuffed unicorns. I think I’ve written about these little gems before. They are absolutely darling. The purple one is my favorite. After playing with him for a little while, I told Reese AGAIN how much I loved the toy. Reese looked up, looked at the purple unicorn in my hands then looked me right in the eye and said, “It’s mine.” Well … OK then, HA! Oh, this kid cracks me the heck up!
Well, I hope you all have a day where some one puts you in your place!!!
October is both Down Syndrome Awareness Month and Breast Cancer Awareness Month. Needless to say, it’s a huge month around our house.
Well, I hope you all have a month where you celebrate your greatest heroes!!!
I took Reese to a Girl Scout Open House this evening. I really wasn’t sure how it would go. Sometimes Reese can be very outgoing and sometimes she can be quite introverted. Being that this was her first day out of the house since she got sick, I really didn’t expect it to be well received. I figured it might not hold her interest or that it would be too overwhelming. I even told Libs, as we walked out the door, that we would be back in about an hour and a half … or 20 minutes. HA! Anyway, I wasn’t going to push it. I really wanted this to be Reese driven. I wanted her to chose it, not me.
And boy, did she!
Within two minutes of arriving a swarm of adorable little girls came to greet Reese. Soon thereafter they were holding hands and bringing her into the activity room. Reese was all smiles! When I went in to check on her, after I signed us in, I was greeted by a friend. I had no clue that she was a Girl Scout volunteer! The night was going great and my nerves were definitely being calmed. Having a child with Down Syndrome and special needs I often worry when we enter in to a new environment. Will people understand her speech? Will it be too loud for her? Will she be asked to eat something she can’t? It can be very stressful. But when I saw my friend there I was instantly put at ease. Phew! Not only that, I looked around to find Reese sitting in a circle with the other girls already participating in the activities! They had an older Girl Scout watching over Reese and giving her guidance. This momma was overjoyed! They were so helpful and accommodating! They didn’t bat an eye. They just jumped in and did all they could to help Reese fit right in. It was honestly beautiful. Reese had a ball with the girls and she was so proud of the bracelet that she made and the picture she colored. Needless to say, I signed Reese up for Girl Scouts tonight and I signed myself up as a volunteer. The leaders are working to find a local troop that will suit Reese best. Tonight couldn’t have gone smoother. And I couldn’t be more excited to see where this new journey takes her. Thanks Girl Scouts, thanks. You really know how to make people feel welcome, safe and included.
Well, I hope you all have a day where you become a Girl Scout!!!
I had planned on being super productive today. And I started off that way too! I made a fun breakfast for my family. I cleaned. I did laundry. And I decorated the house for Halloween. But right after lunch Reese, who hasn’t been feeling well this weekend, cuddled up next to me on the couch and laid her head down on my tummy. She immediately fell asleep. Aw. She is still asleep and I’m not moving a muscle until she wakes up. Bless her little heart! Her sweetness has overthrown any desire I have to be productive today. If my drippy, sniffly princess wants snuggles and rest with her mommy, she will darn well get it!
Well, I hope you all have a day where your priorities change!
I have written many times before that my youngest daughter, Reese, has Down Syndrome. I’ve also written about her biggest delays, which are in her oral motor development. Her speech is severely delayed. She also doesn’t chew her food. She has many food aversions because of it and really doesn’t understand the whole social part of eating. It is just a means to an end. Well, last night and this morning we had some HUGE break throughs!
Last night we went to Dave and Buster’s and Reese picked up a menu and told me she wanted macaroni and cheese. She has NEVER done that before. She ate almost the entire bowl of mashed up mac and cheese and she drank their lemonade served in their cup. She asked to try all of our drinks too. Again, this NEVER happens. Not only THAT. When it came time to trade in her tickets she picked a Funko Pop Wonder Woman and … a piece of CANDY. It was all she could talk about! My kid, talking about CANDY! Say WHAT?!?! When we got home it was after midnight and she went straight to bed holding her Wonder Woman and CANDY. I assumed that she would soon forget about the candy and it would end up in the trash at some point.
When she woke up this morning she walked out of her room holding both. She immediately asked to eat her candy.
Candy for breakfast? Um. For this child to STILL be interested in candy THE NEXT DAY was HUGE. For her to ask to eat something knew, EVEN MORE HUGE. So, candy for breakfast? HECK FREAKING YEAH!
The candy was a little tricky for me because I didn’t actually understand what “Nerd Rope” was. My older kids didn’t eat a whole lot of stuff like this and I had never even heard of it before. Anyway, I broke it apart into tiny pieces and Reese immediately put a “Nerd” in her mouth ALL ON HER OWN! Then she tried the jelly-ish rope part thingy. She tried a few more pieces of both and really tried to CHEW. I was in SHOCK. I STILL AM! In about 12 hours of time Reese made more “feeding” progress than she EVER has. She appears to be making up for all the years of “kid food” that she missed too. HA and YIKES! But she is getting it! I am SO HAPPY! This is HUGE AND AWESOME! A dream come true and a MIRACLE! She has come so far. SO SO FAR.
Days like this I am reminded how good my life is. To find this much joy in something so simple makes me know just how much this little girl keeps me grounded and REAL. She is a blessing. I love how she has taught me to look at our lives and the world around us. There aren’t a lot of people who may understand us. Heck, some people might even feel bad for us. But I can you this with all sincerity. Viewing life with Down Syndrome goggles on leaves you with a beautiful perspective.
Well, I hope you all have a day where you are one of the lucky few!!!