Meningitis makes you tired. Very. It’s not just during the active part of the virus either. At least not for me. The two times I have had it the fatigue lasted a very long time. The first time it took me about 8 months for my family to really notice a difference. That’s a long time. And I think that must be my standard. Where I felt the heaviest of my fatigue pass in about April this, 6 months after I was diagnosed, my mornings remained very difficult.
I have ALWAYS been a morning person and for most of my life I’ve needed less sleep than is typical. But not since October. And it has been a hard adjustment. Don’t get me wrong, I am very pleased, as are all my doctors, with my recovery. I’ve done exceedingly well. I am beyond grateful. But the struggle I’ve faced waking up has been a real life changer. I decided sometime in May to make peace with it. It wasn’t what I wanted but I had to accept that the old me “morning me” may never return. I needed to forget about the woman who bounced out of bed in the morning before most people in her timezone ever woke up, HA! I needed to be thankful for all the extra hours God had so generously given me in the past to enjoy my day. I needed to move on and embrace the me that was left after surviving another of life’s battles. And I did.
The came June. I’m needing less sleep and rising with a familiar energy that seems like I’ve found a long lost friend. I’m enjoying the silence of a sleeping home again. I’m working out earlier. I’m getting more accomplished throughout my day. I can’t say I’m 100% myself, but I am pretty darn close. And I really couldn’t be happier.
Well, I hope you all have a day where you feel AWAKE again!!!
If I had to describe this past school year I would describe it as CHALLENGING. It started off as any other year had … and then craziness ensued. Getting sick is one of the most selfish things I could have ever done to my kids, my family and my friends. It derailed all of us.
Do I really believe it was my fault?
No. Of course not. But I still feel a tremendous sense of guilt especially when it comes to my kids. They needed me and there were days when I could hardly lift my head. My heart broke each time I couldn’t do something for them. I was angry when they had to struggle without me. They had to step it up and do so much on their own. Things that I normally would do for them or with them. They missed out on our talks. Moments that they used to deflate from their day or share their excitements. They handled stress and problems without me. Again. It broke me.
Today my son George graduates from high school. Goodness I love this kid of mine! He is gentle, kind, compassionate and brilliant. And throughout this past school year he grew into so much more. He matured naturally but also because he had to. He didn’t fight it. He never acted out. He wasn’t bitter. He just went with it. He helped so much. He took on so much. And he accomplished so much. As painful (and wonderful) as it is to admit this, my baby boy grew up in what seems like a few short months. He had to.
Today feels surreal. I want to cry because it’s over and cry from a sense of relief. This was a tough school year but George did it. He finished despite the curve balls life threw at us. And he somehow managed to thrive.
If we are lucky, as parents, sometimes we get a glimpse of reassurance that our kids are READY to take on the world. They get it. They can do this. Those moments when we see clearly that they are exactly what God meant them to be in this time and in this place. I gratefully had many of these moments this school year. They came as a result of time and nature but also out of pain and need. I don’t believe anything happens by chance so I cannot look back on this school year bitterly. All the events that unfolded have delivered us to this day. My baby boy’s graduation day. He got here precisely how he needed to and in a way that has left him better and more capable. What an amazing young man he has become. Indeed.
Well, I hope you all have a day where you are proud!!!
Today I had another doctor appointment and it went great! As frustrated as I am with the bouts of fatigue I am still experiencing, my doctor told me that I am still doing WAY better than I think I am. It made me very happy to hear that. Sometimes when we are in the thick of things we don’t always see what others do. I know I sure don’t.
It’s been almost four months since I got sick. I have had the best medical care and have been treated with the most compassionate bedside manner throughout this whole ordeal. As disruptive and anxiety provoking as this has all been, I couldn’t be happier with my medical team. They really are my biggest cheerleaders.
Well, I hope you all have a day where you are grateful!!!