Faith, love and miracles …

Despite posting these words every year they still bring me to tears. Happy tears. Tears that warriors cry after winning a long battle. I don’t think I will ever be able to change how I tell this story. To do so would be an injustice to her and to me. And to all of our family and friends who stood by us then and who continue to walk through this life with us now. This story is about our beginning together. The story that we all fought so hard to tell. It is a story about faith, love … and miracles.

When I was about 11 weeks pregnant we were told that she did not look quite so “typical” … I didn’t care. I loved our baby. And I prayed.

A few weeks later we were told, that not only was our baby “not typical”, but that there was a chance I would be delivering her stillborn. I wanted our baby even more fiercely than I had before. And I prayed.

Several weeks later, we almost lost our baby … to which I screamed an angry and adamant “NO!” And I prayed.

A month later we were told that our baby had a “very large hole in her heart” … to which I said, “I don’t believe you.“ And I prayed.

Two months later we were told, “Your baby is small” … to which I laughed and said, “Of all the things that you have told us, this seems pretty manageable.” And I prayed.

Two weeks later, on what was supposed to be a brief doctor’s visit before we headed to our local water park, we were told that our baby was not growing, that she was too small and that she was not acting the way that she should be. We were told that I would be given another amniocentesis to see if her lungs were developed. If they were, my doctor wanted to take her right away. I felt like my body was failing her. And I prayed.

My doctor gave me a drug to speed up our baby’s lung development. The results of the amniocentesis were not what we had hoped for. My doctor told us that our baby’s lungs were not developed, our baby could not breath on her own. Now we had a team of medical professionals. They hoped nothing would go wrong for the next 48 hours so that the steroid they had given me would have time to help our baby’s lungs grow … to which I said, “OK”. And I prayed.

Less than 24 hours later I had a hospital room full of people wearing blue. They were running around and pumping my body full of fluids and drugs. We were told that we could no longer wait. We were told that our baby would not be breathing and that she would be very small and weak … to which I cried in her father’s arms and said, “I’m scared.” And I prayed.

Minutes later I was strapped to a table. I had refused anything that would alter my mental state. I wanted to be there for our baby. It took a long time to get her out. I was told that she was so small that she kept slipping through the doctor’s hands. I kept screaming, “Is she out?!?!” And I prayed.

Then, I heard a cry … to which I thought, “That is a loud cry for a baby who is supposed to be weak, small and not breathing.” And I prayed.

A few minutes later our baby was brought over to me, warmly swaddled, pink as could be, breathing all on her own and with no hole in her heart. (Sure, she had some extra chromosomes, but who cares about that?) And when I saw her I thought, “You are my miracle and I love you.” And then, I praised God for our beautiful daughter.

Nine years ago today, through God’s amazing grace, Reese Lindsey Grace Henry was born by emergency cesarean section. She was 6 weeks early. She weighed 2lbs 15oz and was 15 ½ inches long. My world has not been quite the same since that day … and I would have it no other way.

Happy 9th Birthday to my precious miracle! Reesey Roo you are my JOY, the smile on my face and my WHY! Mommy loves you and all of your extra parts 💕

Well, I hope you all have a day where you celebrate a miracle … and always remember to pray!!!

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Celebrating EXTRA …

Today is World Down Syndrome Day! And we all know that I have someone very special in my life who has Down Syndrome. My beautiful 8 year old daughter Reese!

March 21st is a global day of awareness that has been officially observed by the United Nations since 2012. How cool is that?!?! This date was chosen to represent the triplication of the 21st chromosome (3/21) found in individuals with Down Syndrome. Today I celebrate Reese and the amazing community of people with whom we share our lives.

I was told when I was 15 weeks pregnant that Reese had Down Syndrome. I did not grieve or cry. I did the complete opposite. My heart was immediately filled with hope for the future. And not just for my future or hers. From the moment that I was told that she had Down Syndrome I knew that Reese was going to change the world for the better. It was like a blanket of understanding that I had never felt before. And I have witnessed her work her magic time and time again ever since. She has softened the hardest of hearts and changed the most ridged of minds. I am so proud of her! This little girl of mine is smart, silly, kind and caring. Her compassion for others runs deep. She is a bright light in this dark world. She has taught me SO SO SO much and has showed me what real strength and perseverance looks like. And best of all, she loves me HUGE! Reese is an incredible human being and I am humbled that God chose me to be her mommy. It is truly a blessing and an honor.

I love you my Reesey Roo. You are my hero!

Well, I hope you all have a day where you celebrate EXTRA!!!

A story about faith, love and believing in miracles …

I post these words every year. I don't think I will ever be able to change them. To do so would be an injustice to her. To me. And to all our family and friends who stood by us then and who continue to share this life with us now. This story is about our beginning together. It is a story of faith and love … and believing in miracles.

We were told when I was about 11 weeks pregnant that she did not look quite so “typical” … I didn’t care. I loved our baby. And I prayed.

A few weeks later we were told that not only was our baby “not typical”, but that there was a chance I would be delivering her still born … I wanted our baby even more fiercely than I had before. And I prayed.

Several weeks later, we almost lost our baby … to which I screamed an adamant and angry “NO!” And I prayed.

A month later we were told that our baby had a “very large hole in her heart” … to which I said, “I don’t believe you.“ And I prayed.

Two months later we were told, “Your baby is small” … to which I laughed and said, “Of all the things that you have told us, this seems pretty manageable.” And I prayed.

Two weeks later, on what was supposed to be a brief doctor’s visit before we headed to our local water park, we were told that our baby was not growing, that she was too small and that she was not acting the way she should be. We were told that I would be given another amniocentesis to see if her lungs were developed. If they were, my doctor wanted to take her right away … I felt like my body was failing her. And I prayed.

My doctor gave me a drug to speed up our baby’s lung development. The results of the amniocentesis were not what we had hoped for. My doctor told us that our baby’s lungs were not developed, our baby could not breath on her own. Now we had a team of medical professionals. They hoped nothing would go wrong for the next 48 hours so that the steroid they had given me would have time to help our baby’s lungs grow … to which I said, “OK”. And I prayed.

Less than 24 hours later I had a hospital room full of people wearing blue who were running around and pumping my body full of fluids and drugs. We were told that we could no longer wait. We were told that our baby would not be breathing and that she would be very small and weak … to which I cried in her father’s arms and said, “I’m scared.” And I prayed.

Minutes later I was strapped to a table. I had refused anything that would alter my mental state. I wanted to be there for our baby. It took a long time to get her out. I was told that she was so small that she kept slipping through the doctor’s hands. I kept screaming, “Is she out?!?!” And I prayed.

Then, I heard a cry … to which I thought, “That is a loud cry for a baby who is supposed to be weak, small and not breathing.” And I prayed.

A few minutes later our baby was brought over to me, warmly swaddled, pink as could be, breathing on her own and with no hole in her heart. (Sure, she has some extra chromosomes, but who cares about that?) And when I saw her I thought, “You are my miracle and I love you.” And then, I praised God for our beautiful daughter.

Eight years ago today, through God’s amazing grace, Reese Lindsey Grace was born by emergency cesarean section. She was 6 weeks early. She weighed 2lbs 15oz and was 15 ½ inches long. My world has not been quite the same since … and I would have it no other way.

Well, I hope you all have a day where you celebrate a miracle … and always remember to pray!!!

World Down Syndrome Day … 

Happy World Down Syndrome Day everyone! Down Syndrome is caused by the triplication of the 21st chromosome. That is why today, March 21st (3/21) was chosen as this global day of awareness. Pretty cool, huh?!?! Anyway, you all know that my youngest daughter, Reese, has Down Syndrome. This child is a GIFT! She is the sparkle in my eye. The smile on my face. The determination in my soul. And the joy in my heart! She teaches me every day to slow down and enjoy the moment. She is my fountain of youth! Today I celebrate her and others with Down Syndrome all over the world!

Well, I hope you all have a day where you love someone with extra parts!!!

Celebrating and praying … 

I post these words every year. I simply cannot bring myself to change them. To do so would be an injustice to her. To me. And to all our family and friends who stood by us. It is our beginning together. It is a story of faith and love … and believing in miracles.

We were told when I was about 11 weeks pregnant that she did not look quite so “typical” … I didn’t care. I loved our baby. And I prayed.A few weeks later we were told that not only was our baby “not typical”, but that there was a chance I would be delivering her still born … I wanted our baby even more fiercely than I had before. And I prayed.

Several weeks later, we almost lost our baby … to which I screamed an adamant and angry “NO!” And I prayed.

A month later we were told that our baby had a “very large hole in her heart” … to which I said, “I don’t believe you.“ And I prayed.

Two months later we were told, “Your baby is small” … to which I laughed and said, “Of all the things that you have told us, this seems pretty manageable.” And I prayed.

Two weeks later, on what was supposed to be a brief doctor’s visit before we headed to our local water park, we were told that our baby was not growing, that she was too small and that she was not acting the way she should be. We were told that I would be given another amniocentesis to see if her lungs were developed. If they were, my doctor wanted to take her right away … I felt like my body was failing her. And I prayed.

My doctor gave me a drug to speed up our baby’s lung development. The results of the amniocentesis were not what we had hoped for. My doctor told us that our baby’s lungs were not developed, our baby could not breath on her own. Now we had a team of medical professionals. They hoped nothing would go wrong for the next 48 hours so that the steroid they had given me would have time to help our baby’s lungs grow … to which I said, “OK”. And I prayed.

Less than 24 hours later I had a hospital room full of people wearing blue who were running around and pumping my body full of fluids and drugs. We were told that we could no longer wait. We were told that our baby would not be breathing and that she would be very small and weak … to which I cried in her father’s arms and said, “I’m scared.” And I prayed.

Minutes later I was strapped to a table. I had refused anything that would alter my mental state. I wanted to be there for our baby. It took a long time to get her out. I was told that she was so small that she kept slipping through the doctor’s hands. I kept screaming, “Is she out?!?!” And I prayed.

Then, I heard a cry … to which I thought, “That is a loud cry for a baby who is supposed to be weak, small and not breathing.” And I prayed.

A few minutes later our baby was brought over to me, warmly swaddled, pink as could be, breathing on her own and with no hole in her heart. (Sure, she has some extra chromosomes, but who cares about that?) And when I saw her I thought, “You are my miracle and I love you.” And then, I praised God for our beautiful daughter.

Seven years ago today, through God’s amazing grace, Reese Lindsey Grace was born by emergency cesarean section. She was 6 weeks early. She weighed 2lbs 15oz and was 15 ½ inches long. My world has not been quite the same since … and I would have it no other way.

Well, I hope you all have a day where you celebrate a miracle … and always remember to pray!!!

  

I love her and all her extra parts …

Happy World Down Syndrome Day everyone!!! WDSD is celebrated on 21st day of the 3rd month. Can you guess why? Because it is the triplication (trisomy) of the 21st chromosome that causes Down Syndrome. 3/21, get it?!?! I love it! And apparently the world agrees because since 2012 this day has been recognized by the United Nations as a GLOBAL day of awareness! Cool stuff!

I have always said that Reese is a gift, not just to me and our family but to everyone who has come to know her. Not many people know when and where I was told Reese had Down Syndrome. I was on my way to a little league game for G3 and Libs. My doctor called and I pulled my car over to a small side street in Villa Park, California. What I knew deep down, was confirmed. Reese had Down Syndrome. I did not cry that day nor any other day thereafter because of what I was told. Reese was who God made her to be. She was going to be perfectly her, and I was chosen to be her mom. I loved my daughter. Period. It was in that moment sitting in my car alone, hearing those words DOWN SYNDROME, that I felt a clarity wash over me. I thought, this child will change the world. I know it’s not a typical reaction that you hear about with situations like these. But those friends and family who walked with me through those first few months can attest, no tears fell from my eyes. What came was a fierce love and an excitement to see all the ways this little miracle girl would change hearts and minds. She is destined for great things. I truly believe with all of my heart that Reese was born at this time, in this world, for a mighty purpose … and WE are all part of that purpose. Either through knowing me or Reese personally, through social media or this blog many of you have come to have an awareness of Down Syndrome that you probably never had before. An awareness that you now live and spread to others. Your relationship with Reese, no matter how distant, coupled with your understanding of Down Syndrome has undoubtably helped change this world for the better. And I am abundantly grateful that each and every one of you was chosen to be a part of this beautiful journey with us. 💙💛 

Well, I hope you all have a day where you love someone and all their extra parts!!!