A glimmer of hope and a Joe’s O …

I’ve mentioned before that Reese’s biggest delay is in her oral motor development. One significant issue we have is that she doesn’t chew. Despite years of therapy and trying to teach her how nothing has “turned-on” that ability for her. Nothing. And no amounting of testing, evaluations and specialists can tell us why. So I purée, mash and grind all her food. She’s a great eater but she is choking hazard. And that’s just scary. Really, really scary.

As a parent, you do what you have to do. Therapy, puréeing, whatever. If your child has a special need, you just meet it. You change and do what you have to do to help your child thrive. The changes soon become part of your daily activities and a part of your normal routine. But in addition to these adaptions a slow disappearance of hope occurs too. You start to forget what you had originally wanted for your child. You mourn and move on.

Until this morning I wasn’t even aware of the amount of hope I had lost in this area of Reese’s development. We have adapted well to her limits and her nutritional needs are met quiet well if I do say so myself. Let’s be honest, it was no coincidence that I chose to become a certified nutrition and wellness consultant. I’ve always loved nutrition but my Reese was a huge motivator for me to get my certification.

Anyway, I say that I “realized” all this this morning because twice today Reese picked up 1/4 size pieces of Trader Joe’s Os and put them in her mouth. She needed help getting them to her molars to “chew” them but she totally got the concept. WHOA. This is HUGE.

And IT all came flooding back to me. The hope and dreams I have for my little girl.

Perhaps I’m being selfish but I also want those things for me too. Simple things that parents don’t think twice about are things that Reese and I have never experienced together. I have never seen my daughter delight in eating her birthday cake. I have never seen a smile come across her face when she was given her favorite cookie. And I’ve never not worried that she would choke if I wasn’t there to meticulously monitor her food intake. Yes, I selfishly want all that … for her.

Well, I hope you all have a day where you are given a glimmer of hope!!!

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