Mouth guards and relaxing …

Some days you wake up and know that you are either getting nothing done or that it’s going to take a while to get going. It might feel like a struggle at first. A guilty pleasure of sorts. But when you finally accept the lounge-y laziness that a day presents, it can be quite a wonderful thing.

You just have to make sure that your 5 year old is on board with it too. They may seemingly be totally up for laying around all day, even willing to climb back into bed with you for a nap. But beware. The second they get onto your big bed they tend to become very bouncy. And all daredevil like. And good LORDY, be cautious if they bring their electronics with them. Because as relaxed as you may be feeling, that all goes away when they need “help” with their notebook and smash it into your face so you can see up-close what needs fixing.

Right now … I am thankful I still have teeth.

Well, I hope you all have a day where relaxing doesn’t require a mouth guard!!!

When in Rome … 

Today we headed to the San Bernardino County Fair. I gotta admit, I am not a big fair person. Don’t get me wrong, I always have fun at them, but working myself up to go is a big deal. I tend to be a germ phob and, well, they are pretty germ-y. I also have to put my food anxiety issues aside and just embrace the chemical and preservative laden fare offered in the environment.

Well, I hope you all had a day where said “WHEN IN ROME”!!!

Relieved …

What. A. Day.

Reese went in this morning to have her ear tubes placed, extensive audiology testing, and a few other tests. The BIGGIES being the tubes and the audiology testing to rule out any permanent hearing loss.

Well, it didn’t go as planned.

Reese’s ear canals were too small to have the tubes put in. However, her doctor was able to get out all the fluid from her ears by doing a controlled puncturing of her eardrums (Myringotomy). Creepy, but it works and it isn’t painful. He is hopeful the fluid won’t return but if it does, he already has some treatment plan options. Truth be told, I never even knew this was a possibility. All of it! The canals being too small and medically perforated ear drums. WHO KNEW?!?!

Anyway, as much as things didn’t go as planned with the tubes, we did get fabulous news regarding the audiology testing. Reese can hear. They found no permanent hearing loss or nerve damage.

I have learned that you can’t worry about things until you are absolutely certain that they are YOUR things to worry about. It’s not an easy practice but I have REALLY been trying to live this. I did, however, get freaked out about the possibility of Reese being hearing impaired. The anxiety slowly crept in over the past few weeks and abundantly over the past few days. 

It has been difficult at best.

I am so grateful that my Ree is hearing and that there are more treatment options out there if a need arises. But I am utterly exhausted too. The stress a parent feels when there is a REAL reason to worry about their child is down right awful. It is a painful worry, both physically and emotionally. Our hearts literally ache. All I can say is that I am thankful that this is all over with now. BIG SIGH.

Well, I hope you all had a day where you felt relieved!!!

Clammy …

I sweat. I sweat a lot. Thankfully not randomly, just when I run and work out. I mean, I sweat like regular people too, but I REALLY sweat when I am running or working out. I didn’t used to but then my dietician had me change a few things and WHAH-LA … more sweat.
Anyway, today was a cycling and yoga day for me. But as I started working up a sweat I found it to be somewhat different than my normal sweatiness.

No folks … I’m not going to stop writing about sweat. This is all I’ve got today.

So back to my sweat. I felt muggy. Damp. And humid. Can a person feel muggy, damp and humid?!? Well, I did. And let me tell you, it isn’t pleasant. Some people don’t like to sweat. I actually like it. Except this new sticky ew-ey version my body created today. Perhaps it’s stress sweat. I gotta whole lotta that going on these days. Yes, let’s go with that cause. Detoxing from the drama, the BLAH and the MEH of life! I leaked out my stress all over that stationary bike thingy! And it felt … really … really GROSS.

Well, I hope you all have a day where you don’t feel CLAMMY!!!

Nervously awaiting for something great to happen …

OK … so this Thursday Reese will be having tubes placed in her ears. While she is sedated, an echocardiogram, extensive audiology testing and blood work will also be done. Reese has only had one ear infection her whole life. Which I guess is pretty rare for children with Down Syndrome. But she has been pretty lucky in dodging a whole lot of medical issues typically associated with Down Syndrome. Regardless, her medical team keeps a very close eye on her. And that is A-OK with me!

Anyway, she is having tubes put in because her ENT and audiologist detected clear uninfected fluid in her ears, which could be causing her to have decreased hearing and can ultimately be delaying her speech and feeding. The hope is that by removing the fluid in her ears and giving any recurring fluid a way out, she could hear better and ultimately her speech and feeding issues will be resolved. This would all be WILDLY WONDERFUL!

As a medical social worker I know how easy the procedure is and how beneficial it will be … but as a mother the whole thing still FREAKS ME THE HECK OUT. Knowing my baby will be sedated for at least two hours is down right unnerving. The tubes themselves only take about 15 minutes to place. But the audiology testing is going to be lengthy. They want to ensure that she has absolutely no hearing impairment. If she doesn’t than it should only take another 45 minutes to complete. But if they do find impairment, then they will want to find the source and that can take another 45 minutes in and of itself.

Goodness. Ugh. And OY!

Truth be told, I have been completely calm about everything until today after I spoke with one of the Operating Room nurses. She didn’t say anything particularly scary, but it all became so very real. This IS happening in two days.

I am trying to focus on all the positives that are going to come out of this. And the relief that will come in having the results to all the tests and procedures I requested over six months ago. Along with the imaging we had done a few weeks ago, we will finally have a clear picture of what Reese’s needs are at this stage of her life … and this makes me very happy.

This little girl has my heart. I love her beyond measure. And I want her to have a wonderful and healthy life. I want her to grow and thrive and learn and become the person she is meant to be … because there are incredible things ahead for her. I have always believed that Reese will change the world for the better. Heck, I have watched Reese change the world from my womb. I see how she has changed hearts and minds. How she has spread an awareness about Down Syndrome and torn apart stereotypes. I have watched her influence the thoughts of others in profound ways. Yes, this little girl is quite amazing … and I am absolutely humbled that I was chosen to be her Mommy.

Well, I hope you all have a day where you are nervously awaiting for something great to happen!!!

Marathon training, The Shining, Jack, Ree and me … 

Today I officially began training for my 8th marathon. YAY! And my first training run went very well. It was a 5K and I somehow managed to get under a 9 minute pace. A feat I wasn’t expecting on my tired … no … EXHAUSTED legs. All that pre-training has wiped me out!

Anyway, I guess I should write something poetic about marathon training … but I’m not. Instead I’m writing about ax murderers.

You read that right. 

Yes, folks SHE went from marathon training to ax murderers in 3 seconds flat.

OK, just read me out on this one.

For some reason (perhaps I saw The Shining one too many times growing up) when I am startled awake and I see an image that even remotely looks human, my brain immediately thinks AX MURDERER … and I react accordingly. No joke. And it’s not pretty. Arms, legs and messy curly red hair flailing all over the place. You’ve got the visual.

Now, let’s talk about 5 year olds. These little buggers are the cutest people on earth. And they typically sleep like passed out drunken people. They are OUT. Sleeping for HOURS. A hard, deep sleep that even a parade passing through their bedroom couldn’t wake them. Then there are those nights when they are up and down like yo-yo’s with more energy that is right or just or rational.

Reese had one of THOSE nights last night.

She was up three times between 12:30 a.m. and 5:50 a.m. almost giving me a heart attack every time she woke up. The first time she woke up she decided it would be fun to play with my alarm clock.

No … no it wasn’t fun, AT LEAST NOT FOR ME.

I can tell you this. No matter how quiet, small and cute a person may be, ANYONE who wakes you from a dead sleep standing inches from your face in the dark, could very well be mistaken for an ax murderer. Truth.

The second time Reese woke me up last night was with a big SLAM. She slammed my bedroom door shut. So immediately I woke up believing my ax murderer was about to scream in his best Jack Nicholson voice, “JENNY,  I’M HOME!” 

Oh. My. God.

The third time Reese woke me up it was almost 6 in the morning. So there was at least some daylight. However, after the two previous near heart attack situations this wake up call was only slightly better.

“HI … ELLO … HI … ELLO!!!” to the top of her lungs. All I thought (giggling to myself) was that at least now my little ax murderer wanted to be friends with me before they harmed me. HA!

“Good morning princess … mommy is awake now. Promise.”

Well, I hope you all have a day where you were scared out of your mind by the most precious person you know!!!